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Hi everyone! Welcome to my blog where I desire to bring awareness to the MS disease through my transparent everyday journey. By sharing a piece of my life, I wish to promote change and inspire those who read. Please enjoy and share these stories with someone who could use a word of encouragement.

         "I can do all things through Christ who gives me strength"  - Philippians 4:13

You may not control all the events that happen to you, but you can decide not to be reduced by them. 
- Maya Angelou

Hi everyone!

As the golden rays of summer begin to warm our world, many of us in the Multiple Sclerosis community feel a familiar mixture of excitement and caution. While the sunny days invite outdoor celebrations, family barbecues, and quiet moments in nature, summer brings a unique and challenging test for those of us navigating heat sensitivity. In our MS journey, high temperatures are not just a minor discomfort: they can amplify fatigue, blur vision, and slow down our nervous system in ways that feel overwhelming.

Yet, I am reminded of the comforting wisdom in Isaiah 43:2: "When you pass through the waters, I will be with you; and through the rivers, they shall not overwhelm you." We are never walking this path alone. Through faith, collective resilience, and practical wisdom, we can protect our peace, guard our energy, and stay truly MS Strong all season long.

Have you ever stepped outside on a July afternoon and felt your energy drain away in a matter of minutes? Have you ever wondered how to enjoy the beauty of summer without letting the heat steal your vitality? I have wrestled with these exact questions on my own survivor journey, learning through trial and error that preparation is an act of self-love and spiritual stewardship.

At the Angels Hearts for Hope Foundation, our mission is rooted in sharing hope and healing through prayer, exercise, and collective resilience. Today, I want to share five vital, heartfelt strategies to help every MS warrior beat the heat, protect your well-being, and thrive with courage.

1. Master the Art of Pre-Cooling Before Going Outside

When summer temperatures soar, waiting until you feel overheated is a recipe for exhaustion. One of the most effective and courageous steps you can take is pre-cooling your body before stepping out into the world.

Pre-cooling involves lowering your core body temperature before heat exposure, giving you a valuable thermal buffer. Think of it as putting spiritual armor on before entering a battle; you prepare your vessel so you can meet the day with strength.

  • How to practice it: Take a cool or tepid shower 30 to 40 minutes before leaving your air-conditioned sanctuary. Gradually lower the water temperature at the end of your shower to calm your nervous system.

  • Pair it with gear: Slip on a cooling vest or a pre-chilled neck wrap while you get dressed. By bringing your baseline temperature down ahead of time, you invite peace and stability into your physical frame, ensuring your daily errands or morning walks remain life-giving rather than depleting.

Founder Lisa Ray sharing insights and advocacy for MS warriors in the recording studio

2. Invest in Smart, Budget-Friendly Cooling Gear

You do not need an extravagant budget to protect yourself from the summer sun. Today, there is a magnificent array of accessible cooling technology designed specifically to support people living with neurological conditions. Exploring these tools is an essential part of building your personal wellness toolkit: something we frequently discuss in our community resources.

Let’s look at some of the most effective, budget-friendly options available to MS warriors:

  • Cooling Neck Wraps and Collars: Lightweight and discreet, these wraps use advanced hydro-crystals or phase-change materials to target the carotid arteries in your neck, cooling the blood flowing directly to your brain. They are inexpensive and easy to toss into a bag.

  • Evaporative Vests: Ideal for dry climates, these vests use natural evaporation to draw heat away from your torso. You simply soak them in water for a few minutes, wring them out, and wear them over or under your favorite outfit.

  • PCM (Phase Change Material) Vests: If you prefer a gentle, sustained chill without the "ice-burn" shock of traditional frozen packs, PCM vests maintain a steady, comfortable temperature (usually around 58°F) for hours. They recharge easily in a refrigerator or cool water.

  • Portable Handheld Neck Fans: Rechargeable, bladeless neck fans are a game-changer for outdoor events or waiting in line. They direct a steady breeze upward toward your face and neck, keeping air circulating constantly.

By equipping ourselves with these vital tools, we reclaim our freedom to move through the world with grace and confidence.

3. Time Your Activity for the Cooler Parts of the Day

In the rhythm of creation, there is a time for the blazing midday sun and a time for the gentle whisper of the early morning breeze. Ecclesiastes 3:1 reminds us that "for everything there is a season, and a time for every matter under heaven."

When managing MS heat sensitivity, timing is everything. Why fight the fiercest heat of the afternoon when you can align your schedule with nature’s most tranquil hours?

  • Embrace the dawn and dusk: Schedule your outdoor walks, light gardening, or errands for the early morning hours (before 10:00 AM) or late evening (after 6:00 PM) when the sun is gentle and the air is breathable.

  • Give yourself permission to pause: If your day requires you to be out during peak hours, make it a point to seek out shade, stay in air-conditioned spaces, and take a mental health day when your body signals that the atmosphere is too taxing.

As we often say in our community, being MS Strong doesn't mean pushing past your limits until you break; it means listening to your body's whispers so you never have to hear its screams.

Smiling community members gathering together in celebration of resilience and sisterhood

4. Create a Dedicated "Cool Zone" at Home

Your home should be your sanctuary: a place of absolute peace, healing, and physical restoration. When the summer heatwaves outside become relentless, having a designated cool zone inside your home can make all the difference in your daily recovery.

  • Designate your sanctuary: Choose a comfortable room in your house: perhaps your bedroom or living room: that receives the least direct sunlight. Equip it with a reliable air conditioner, blackout curtains to block out solar heat, and circulating floor fans.

  • Infuse peace into the space: Fill your cool zone with things that nourish your spirit: uplifting devotionals, comforting blankets, soothing aromatherapy, and plenty of cold, refreshing water infused with lemon or cucumber.

  • See quiet time as sacred: Spend your afternoons in this sanctuary reading, meditating, or simply resting. Give yourself permission to disconnect from the hustle of the world and seek quiet time with your thoughts and your faith. Be well, dear friend, and let this space be your physical and spiritual refuge.

5. Listen to Your Body and Practice Grace

Out of all the survival tips I can share with you, this is the most vital one: listen to your body with radical compassion.

Multiple Sclerosis teaches us profound lessons in surrender. On some summer days, your body will ask you to slow down, stay indoors, and rest. On those days, do not look at rest as a failure. Look at it as an act of courageous self-care.

  • Watch for early warning signs: A sudden spike in fatigue, heaviness in your limbs, cognitive fog, or muscle spasms are gentle reminders from your nervous system asking you to pause and cool down.

  • Extend grace to yourself: We are part of a magnificent, collective movement of warriors who understand that strength is not measured by how much heat we can endure, but by how tenderly we care for our temples. If you need to cancel plans, change your routine, or spend an entire afternoon with an ice pack on your neck, do so without guilt.

As Helen Keller once wisely noted, "Character cannot be developed in ease and quiet. Only through experience of trial and trial can the soul be strengthened, ambition inspired, and success achieved." Every summer day you navigate with mindfulness and resilience adds to your unshakeable character.

Heartfelt Gratitude and Looking Forward

As I reflect on our vibrant community and the incredible journey we share, my heart overflows with deep, emotive gratitude. I want to express my most heartfelt appreciation to our dedicated caregivers, loving family members, courageous advocates, and every single MS warrior who pours love, prayer, and encouragement into our foundation. Your steadfast commitment is the lifeblood of Angels Hearts for Hope.

To learn more about our mission, our inspiring survivor stories, and upcoming community initiatives, I invite you to explore our About Page and discover fresh insights on our Blog.

Let us continue walking hand-in-hand, pushing forward through every seasonal trial, and journeying together toward a hopeful, radiant future filled with peace, light, and enduring healing.

Founder portrait embodying resilience, hope, and the joyful spirit of the Angels Hearts for Hope Foundation

“The Lord is my strength and my shield; in him my heart trusts, and I am helped.” ( Psalm 28:7)

 
 
 
  • Writer: lisaray9989
    lisaray9989
  • Jul 20
  • 3 min read

Hi everyone! It is such a blessing to connect with you again on this beautiful Monday. I hope your heart is full and your spirit is ready for the week ahead.

Lately, I’ve been reflecting on the nature of strength. As many of you know from my own journey living with Multiple Sclerosis, there are days when the simple act of getting out of bed feels like climbing a mountain. I’ve had those mornings where the fatigue feels like a heavy blanket that just won't lift, no matter how much coffee I drink or how much I pray for a spark. Have you ever felt like your internal battery is stuck at five percent, even after a full night’s rest?

It’s in those moments of vulnerability that I remind myself of Isaiah 40:31: "But those who hope in the Lord will renew their strength. They will soar on wings like eagles; they will run and not grow weary, they will walk and not be faint."

Renewing that strength isn't just a spiritual act, it's a physical and mental one, too. Today, I want to share some vital, heartfelt tips to help you manage your energy so you can continue to be the courageous warrior God called you to be.

1. Budget Your Energy Like a Treasure

We often think of energy as something that should just be there, but when you are managing MS, energy is a precious currency. We must be wise stewards of what we have.

Our founder, Lisa Ray, sharing her journey of resilience and hope.

I’ve learned to "budget" my day. I tackle my most important tasks, whether that’s advocacy work or household needs, during my peak hours, which are usually in the morning. Ask yourself: What is the one thing I must accomplish today to feel fulfilled? Focus your light there first. Give yourself permission to delegate the rest or save it for another time. Remember, saying "no" to a minor task is saying "yes" to your health and peace.

2. The Power of Movement: MS Exercise and Wellness

It might seem counterintuitive to move when you feel exhausted, but managing MS through exercise is one of the most effective ways to reclaim your vitality. Movement generates energy!

A person practicing gentle, restorative yoga in a bright studio.

You don’t have to run a marathon to be a warrior. In our community, we believe in the power of collective movement, no matter how small. Consider these gentle, unforgettable shifts in your routine:

  • Walking: A short, brisk walk in a cool environment can clear your mind and wake up your muscles.

  • Yoga and Stretching: These are vital for maintaining flexibility and reducing the stiffness that often contributes to fatigue.

  • Water Exercise: If you struggle with heat, a cool pool is a sanctuary for MS exercise and wellness.

Always listen to your body. We aren't looking for perfection; we are looking for progress. Take a mental health day if you need it, but try to find a way to move your temple every single day.

3. Nourish Your Temple

What we put into our bodies is the fuel for our fire. When we are living with Multiple Sclerosis, our nutritional choices can either dampen our spirits or ignite our energy. Focus on whole, nutrient-dense foods, leafy greens, lean proteins, and plenty of water.

Dehydration is a silent energy thief! Make sure you are drinking enough water throughout the day to keep your systems running smoothly. Think of each glass of water as a refreshing rain for your internal garden.

4. Seek Quiet Time and Spiritual Rest

We cannot give from an empty cup. Sometimes, the best way to boost your energy is to actually stop and see quiet time.

A serene space for reflection, prayer, and restoration.

True rest is more than just sleep; it’s about restoring your soul. I find that spending time in prayer and meditation helps reset my nervous system and calms the "noise" of daily life. Are you taking time to sit in the stillness and listen for that still, small voice?

Whether it's a ten-minute power nap or a dedicated hour of scripture reading, these moments of peace are where our deepest healing begins. For more insights on finding peace, feel free to browse our blog for shared stories of resilience.

We Are a Movement

I want you to remember that you are never walking this path alone. You are part of a vibrant, MS warrior inspiration movement. We lean on each other, we pray for each other, and we lift each other up when the road gets steep.

A radiant MS survivor embodying the joy and strength of our community.

If you are looking for more MS community resources, please visit our Resources page. We are here to provide the support and advocacy you need to thrive, not just survive.

Be well, stay hopeful, and keep pushing forward. We are journeying together toward a future filled with light and healing. I am so proud of the strength you show every single day.

Let’s keep walking in faith and moving in hope!

With love and light,

Lisa Ray Founder, Angels Hearts for Hope Foundation

 
 
 

Hi everyone! It is such a blessing to connect with you all today. Whether you are reading this as a warrior fighting the daily battle of Multiple Sclerosis or as the steadfast caregiver standing in the gap, I want you to know that you are seen, you are loved, and you are part of a movement that is built on the foundation of hope.

I’ve often said that my journey as an MS survivor isn’t just about my own healing: it’s about our collective resilience. But today, I want to pull back the curtain and talk to the "silent partners" in this fight: the caregivers. I know the weight you carry. I’ve seen the fatigue in the eyes of those who love us most. It’s a vital role, a courageous one, and honestly, a holy one. But here is the truth we often forget: you cannot pour from an empty cup.

How do we support our MS warriors with everything we have without losing the very essence of who we are? How do we remain a beacon of light when the shadows of MS feel long and heavy? Let’s walk through this together, leaning on faith and community to find our way back to center.

The Heart of the Matter: Understanding the Invisible

One of the hardest parts of MS is that so much of the battle is invisible. From the soul-crushing fatigue to the cognitive "fog" that can roll in without warning, our warriors are often fighting a war that no one else can see. As a caregiver, your first act of support is a spiritual one: it’s the gift of belief.

When you take the time to understand the symptoms of MS, you aren’t just gaining medical knowledge; you are gaining a moral compass for your relationship. You begin to realize that when your loved one is irritable or exhausted, it isn’t a reflection of your care: it’s the disease speaking.

But here is the rhetorical question we must ask ourselves: if we spend all our energy trying to fix the invisible, do we stop seeing the person right in front of us? Supporting a warrior means being a partner, not a savior. Our warriors need their dignity preserved as much as they need their symptoms managed. Work as a team. Ask, "How can I support you today?" instead of assuming you have to do everything. This simple shift protects their independence and your sanity.

A woman in a moment of quiet reflection and prayer, representing a caregiver's vital mental health moment

The Spiritual Anchor: Setting Boundaries in Love

In our faith, we are taught that even Jesus took time to withdraw to quiet places to pray. If the Son of Man needed time to recharge, why do we think we can go 24/7 without a break?

"Taking a mental health day" or "seeing quiet time" isn't selfish; it’s stewardship. You have been entrusted with a life, and that includes your own. I want to encourage you to be well by setting boundaries. It’s okay to say, "I love you, and I am so glad I can help, but I need thirty minutes of silence to reconnect with my spirit."

Scripture tells us that "The Lord is my shepherd; I shall not want. He makes me lie down in green pastures; He leads me beside the still waters." Sometimes, we have to let ourselves be led to those still waters. Whether it’s through 5 minutes of morning prayer, journaling your heart out, or simply sitting in nature, these moments are the glue that keeps your identity intact. Don't let MS become the only thing you talk about. Keep your hobbies, keep your friendships, and keep your connection to the Divine.

A Moment of Shared Joy: The B Sides Benefit Concert

One of the ways we reclaim our joy is through the power of music and community. I am beyond excited to invite you to an event that is close to my heart and vital to our mission here at Angels Hearts for Hope.

Bryce Valle’s "The B Sides" Benefit Concert is happening on July 18th at 7:00 PM! This is more than just a concert; it’s a celebration of life, resilience, and the heartbeat of our community. Bryce is a truly unforgettable talent, and he is using his voice to lift ours.

The concert will take place at the prestigious The Green Room 42 in the heart of New York City, but because we are a global movement, a live stream is also available! This is the perfect opportunity for caregivers and warriors to take a night off from the clinical side of MS and step into a world of high-energy inspiration and heartfelt music.

By attending, you aren’t just hearing great music; you are contributing to a cause that provides resources and a supportive community for those living with MS. You can see more of our past community triumphs in our gallery.

A dynamic photograph of a live musical performance with golden stage lights, capturing the energy of the benefit concert

Practical Steps to Find Your Footing

I want to leave you with some instructional thoughts: soft imperatives to carry in your heart this week:

  1. Seek Out Respite: Do not wait until you are burnt out to ask for help. Reach out to family or friends and let them sit with your warrior while you take a walk or see a movie.

  2. Join a Movement: You are not alone. There are so many of us walking this journey. Visit our resources page to find support groups and advocacy tips.

  3. Audit Your Schedule: Are there things you are doing out of guilt rather than necessity? Give yourself permission to let go of the non-essentials.

  4. Embrace Laughter: Sometimes the most spiritual thing you can do is find something to laugh about. MS takes so much; don't let it take your sense of humor.

Walking Toward a Hopeful Future

As we journey together, remember that healing isn't always about the absence of disease; often, it’s about the presence of peace. To the caregivers: thank you. Your love is the hands and feet of hope. To the warriors: thank you for your courage.

We are pushing forward, one step at a time, toward a future where MS no longer defines us. I hope to see you: either in person or through the screen: at Bryce Valle’s concert. Let’s fill our cups with the music of resilience and the spirit of community.

Be well, stay hopeful, and remember: we are MS strong.

With heartfelt gratitude and love,

Lisa Ray Founder, Angels Hearts for Hope Foundation

Two women smiling together at an Angels Hearts for Hope event, representing the supportive community

"But those who hope in the Lord will renew their strength. They will soar on wings like eagles; they will run and not grow weary, they will walk and not be faint." : Isaiah 40:31

 
 
 
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